Your Stories
Your Stories

Carden Wyckoff

Georgia, USA

When Carden Wyckoff was 9 years old, we found out she had a form of muscular dystrophy known as FSH (facioscapulohumeral). Over the course of the last 14 years, this genetic disorder has been the

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Keith Martin

Vancouver, BC

I was diagnosed with FSHD in 2005, and was devastated when I got the news. Very active as a young man, I virtually stopped playing my favourite sports because seeing the decline in my performance was too tough to...

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Craig's Story

Kelowna, BC

Somebody recently asked me "what it's like to live with FSHD?". I gave them the best answer I could: "Physically, it's like gravity is being turned up on you. Everything you do from year to year is more difficult – walking, stairs, reaching...

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