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Our Mission

The singular goal of the FSHD Canada Foundation is to help find a cure — as soon as possible — for Canadians who suffer with FSHD.

To accomplish this the Foundation aims to reach out to all Canadians to make them aware of what is going on in FSHD research and to solicit financial support for the critical research required to find a cure. The Foundation will then use these funds to support FSHD research — in Canada and around the world.

What is FSHD?

Facioscapulohumeral muscular dystrophy or FSHD is the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. Muscular dystrophy in general connotes a genetic, hereditary muscle disease that causes progressive muscle weakness. FSHD is also broadly characterized as a neuromuscular disease (NMD), as muscular dystrophy is a subset of NMD. Muscular dystrophies are alike in that they cause progressive skeletal muscle weakness, defects in the biochemical, physical and structural components of muscle, and the death of muscle cells and tissue. However, researchers believe that the causes of each of the muscular dystrophies are not necessarily the same.


Exploiting Genome Editing Technology To Modify And Regulate The Fshd Disease Locus

Recent discoveries of DNA-binding factors have opened up tremendous new possibilities...

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FSHD Canada Co-funds Two Very Promising Research Projects

We are excited to announce that FSHD Canada has co-­funded two very promising...

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Local Comedians Carter Hortie And Dino Archie Perform At #STANDUP4FSHD At New Westminster's Columbia

A night of comedy to raise funds for FSH Muscular Dystrophy research...

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Cruising for a Cure for FSH Muscular Dystrophy

Deeley Motorcycle Exhibition

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